Local Support and Shared Experience
Finding people who understand what you are going through can make a real difference after a brain tumour diagnosis. Brain tumour support groups provide an opportunity to talk, share experiences, ask questions and connect with others who may be facing similar challenges.
The Three Tumours runs a support group in Newcastle, and we can also help point you towards other brain tumour support groups in the North East and online.
The Brain Tumour Charity provides online support communities and maintains a directory of local brain tumour support groups across the UK. Its online groups include communities for people affected by different tumour types, carers and families
www.thebraintumourcharity.org
brainstrust provides practical and emotional support for people living with a brain tumour and their families and carers. Support includes personalised help, meetups, webinars and a 24/7 helpline.
www.brainstrust.org.uk
If travelling to a face-to-face meeting is difficult, online brain tumour support groups can provide another way to connect with people who understand.
The Brain Tumour Charity offers several online communities, including general brain tumour groups and communities for people affected by glioblastoma, meningioma and acoustic neuroma. There are also groups aimed at carers and other people supporting someone with a brain tumour.
Online support can be particularly useful if there is no suitable group nearby, travelling is difficult because of treatment or fatigue, or you simply feel more comfortable connecting from home.
Support groups are not only valuable for the person who has been diagnosed. A brain tumour can affect partners, parents, children, friends and carers too.
National organisations provide support specifically for families and carers, and some local groups welcome anyone affected by a brain tumour diagnosis. The NHS also signposts people affected by brain tumours to organisations including The Brain Tumour Charity and brainstrust for further support.
For more practical guidance, visit our Brain Tumour Support for Families page.
Start here: quick, helpful answers from our brain tumour charity in the North East.
If you still have questions, please do get in touch.
A brain tumour support group brings together people affected by brain tumours so they can share experiences, talk about everyday challenges and connect with others who may understand what they are going through.
Local groups can be found through organisations such as The Brain Tumour Charity, which maintains a directory of brain tumour support groups around the UK.
Yes. Several organisations provide online brain tumour support groups, making it possible to connect with others even if you cannot attend a meeting in person.
Some groups welcome carers, partners, family members and friends as well as the person diagnosed. Always check the details of the individual group before attending.
No. Some people are comfortable sharing their experiences straight away, while others prefer to listen initially. There is no pressure to discuss anything you do not feel ready to talk about.
Contact The Three Tumours and we can confirm the details of the next Newcastle meeting and help answer any questions before you attend.
